Resources

As a TBI survivor, I know firsthand that healing is rarely a straight line; it is a journey of rediscovery that requires immense patience and the right support. While I am not a medical professional, the following resources are a collection of tools, communities, and organizations that I personally found helpful during my own recovery. My hope is that these links—ranging from cognitive exercises to stories of transformation—serve as a helpful compass for you or your loved ones as you navigate your own unique road to recovery.

Organizations & Advocacy

Brain Injury Association of America (BIAA) www.biausa.org The BIAA offers contact information for state affiliates and support groups. It is one of the most comprehensive sites for post-injury information and advocacy.
Brain Injury Resource Center www.headinjury.com A non-profit clearinghouse providing creative solutions and leadership for patients and caregivers since 1985.
Traumatic Brain Injury Model Systems www.msktc.org/tbi A national center offering free resources for rehabilitation, daily living, and emotional issues, funded by the National Institute on Disability and Rehabilitation Research.
Synapse www.synapse.org.au An Australian-based nonprofit dedicated to raising awareness about Acquired Brain Injury (ABI) and neurological disorders.

Tools & Educational Guides

BrainLine.org www.brainline.org A multimedia site offering information on preventing, treating, and living with TBI.
Traumatic Brain Injury Survival Guide www.tbiguide.com An online book by Dr. Glen Johnson designed to prepare survivors and families for the long road of recovery.
Brain Tips: Inspirational and Motivational Calendar www.lapublishing.com A perpetual calendar by Cheryle Sullivan, M.D., featuring quotes and tools to help exercise memory and attention.
Understanding Brain Injury: A Guide for the Family Download PDF Guide A 64-page comprehensive guide published by the Mayo Clinic for families of brain-injured patients.
BrainInjury.com www.braininjury.com Information on brain anatomy, injury symptoms, and recovery stories.

Inspiration & Personal Stories

Living with Brain Injury (The Brain Fairy) thebrainfairy.com An information center and source of inspiration for survivors, caregivers, and families.
TBI Journey www.tbijourney.com Cheryle Sullivan shares her personal recovery story along with tools and strategies for managing cognitive loss.
Who Am I to Stop It? whoamitostopit.com A documentary film exploring isolation, art, and transformation after a brain injury.
Realistic Hope www.realistichope.com A TBI community connecting survivors and families to help them build a unique roadmap for recovery.

Clinical Treatment & Specialized Care

Centre for Neuro Skills (CNS) www.neuroskills.com Providers of post-acute medical treatment and therapeutic rehabilitation since 1980.
The Mind-Eye Connection mindeyeconnection.com Dr. Deborah Zelinsky provides specialized optometric care for re-developing mind-eye connections after an injury.
The Upledger Institute www.upledger.com A healthcare resource center recognized for advanced treatment options and CranioSacral Therapy.
International Society for Neurofeedback & Research www.isnr.org Promotes excellence in applied neuroscience and neurofeedback to enhance brain function.

Trauma & Mental Health Support

Hope After Brain Injury www.hopeafterbraininjury.org Focuses on counseling, education, and community connection for those affected by TBI.
Somatic Experiencing® Trauma Institute www.traumahealing.org A body-awareness approach to healing trauma.
What is PTSD? 3 Steps to Healing Trauma www.whatisptsd.com A resource for anyone who has experienced a major life-disturbing event.
Traumatology Institute www.ticlearn.com Offers a comprehensive curriculum in field trauma response and clinical traumatology.